Declan’s Diary March 2010

Although it seems like months ago I’d like to wish all of our readers a happy new year, I can hardly believe that were already in March!!
I want to start off by mentioning Harry, a good friend of ours who had Muscular Dystrophy and sadly passed away in his sleep just before Christmas aged only 14. His funeral was evidence of how loved and popular Harry was as there was barely standing room only. My thoughts are still with his parents whom grief is unimaginable. “Good night and God bless you Harry”.
On the 14th of December one for Declan’s wishes finally came true……a home in which he can safely move around in his chair. The smile on Declan’s face was priceless when he came with me to view the private property. The bungalow was built for a young lady who had been left wheelchair bound after a car accident, so all Declan’s needs can be met here. Things had got so bad at our tiny bungalow in Mountsorrel that my back and shoulder injury were making it near impossible to carry Declan around the bungalow and his new wheelchair, which is expected in March, wouldn’t have even fitted through the front door. The council were still unable to find somewhere suitable for Declan’s needs, so to finally find somewhere wheelchair friendly on the open rental market after months of looking was an absolute god send. Unfortunately we can only rent the bungalow for a year so our housing plight is still far from over, however we must live for the day, and at present we have a perfect home! Christmas couldn’t have been any better for Declan, he was able to drive his remote control Stig around the bungalow and he even enjoyed a ride on a sledge.
Declan’s physical ability continues to deteriorate with him now unable to wash his hands or brush his own teeth despite us now having the correct equipment, however his inner strength is amazing and his bravery continues to surprise me every day. My little boy has now turned into a young man that I am extremely proud of.
Until next month’s Declan’s diary, take care x Alexandra Hill