Declan’s April Diary
Thursday, April 1st, 2010 at 00:01
This morning I hugged my gorgeous boy as I was getting him dressed for school. He couldn’t lift his arms to hug me back and he started to cry. The doctors don’t give you a hand book on how to handle the frustration and emotions that come along with Duchennes. How can you tell your 11 year old son that its “ok” that he’s loosing the strength in his arms and that everything will be alright? You can’t, can you, you just have to hold him and wipe away his tears whilst fighting back your own. To be a parent and not be able to protect your child from this pain is unbearable. My love for Declan is more natural than my own heart beat, but this natural, unconditional love can not beat Duchennes. Nothing can!When you read this, we will be in sunny (hopefully) Australia, on Declan’s dream trip and he is so excited. I am hoping that during our time in Oz Declan can simply enjoy himself and forget, or put to the back of his mind, what is happening to his body so that he can have a really amazing time. Whilst we are in Australia we will be visiting Sydney, sea world, Tangalooma Island and of course, the main reason for going Steve Irwin’s zoo. If you would like to follow us on our journey please join Project Oz on face book where I will be adding photos and blogs of our adventure.
Once again, thank you to all that have donated and have contributed in making this wish happen for Declan and to Liam East of Millington travel who has spent hours making sure everything runs smoothly whilst we are in Oz.
For now, “Good day mate!”
Alexander Hill.
Add to:
del.icio.us |
Digg
del.icio.us |
Digg
Calendar developed and supported by Kieran O'Shea


No Comments
Comments are closed.