Beedles Golf Club Cheque Presentation

On Friday 28th April, the Stn was invited to Beedles Golf Club to record the presentation of a cheque for £5,391.64 raised across the year by the Captain, Graham Able, in aid of RETT UK.
Graham’s Granddaughter, Heidi, (21) pictured above, has this syndrome and the money raised will go towards a portable hoist to be used at regional events, plus a new project of education and communication aids.
Our picture above shows Graham presenting the cheque to RETT UK representative Lowri, who also has a daughter with the condition with family and friends .
Graham wanted to say a big thank you to everyone who has donated or supported his year as Captain and that this amount will go a long way to helping girls with this condition.
Rett syndrome is a complex neurological disorder. Genetic in origin, it affects one in 12,000 females and a few males. Although signs of Rett syndrome may not be initially obvious, it is present at birth and becomes more evident during the second year.
Rett UK is the only UK charity which provides professional support to people living with Rett syndrome across the UK.
Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.
Rett UK supports our families through a national helpline, including telephone, email and social media support, co-ordinate Rett specialist clinics in conjunction with the NHS, organise local support groups, as well as regional days and have a dedicated parental contact network. We also provide training for people who are supporting someone with Rett syndrome whether that is in a school, college, day centre, supported living, respite or residential setting.
We are a small team working on a national level. We receive NO government funding and rely entirely on donations and grants to fund our work.
For more information please visit the Rett Uk website: http://www.rettuk.org/