Declan’s Diary

For the benefit of new readers to this column, please allow me to take you back to where it all began.
On July 3rd 2006, I sat with my daughter, as a consultant explained her only child’s diagnosis. Although he was born with Duchenne Muscular Dystrophy, he was three months away from his 8th birthday before his symptoms were finally recognised; by which time, he struggled to walk, climb the stairs, and stand from a sitting position. He had been branded an attention seeker at school! Nothing could have prepared us for the words that are still etched in our memories. ‘There is no cure. He may see his 18th birthday, but if you’re lucky, he may live into his early 20’s’.
An ocean of tears were cried, as we tried to make sense of this cruel disease. Our hearts sank even further when we were told there was no research into his type of DMD. We made a pact to give him the best life possible, making every day count.
Alex (Declan’s Mum) made it her mission to learn more about the human body, especially muscles, because Declan’s were slowly wasting away. Qualifications in Sports Therapy Levels 3, 4, and 5 were gained. Eager for more knowledge, Alex also studied English Rugby Level 2 and Pre Hospital Immediate Care along with various other short courses including Pitch Side First Aid & Trauma, plus Sports Taping and a Shoulder Master Class. This knowledge has given her the confidence she needed to help Declan, especially as his lungs deteriorated. 
He has had admissions to hospital for Pneumonia on a number of occasions. While the procedure is to wait for a Physio to come to the ward to help him shift muscus from his chest, his mum is more than capable of doing the job just as good, if not better, because of the unique bond and trust between mother and son. I could not be more proud of them both.
Thankfully, it’s nearly three years since Declan had a spell in hospital. Alex gets on top of any sign of a cough, to prevent hospital admission,  with the additional risk of contracting other viruses, which can be very frightening in Declan’s case.
We are all looking forward to October 3rd, when Declan will celebrate his 21st birthday. Plans for a spectacular night are underway, when we can spoil this brave young man, who is an inspiration to younger boys who are facing life with Duchenne Muscular Dystrophy.
We are eternally grateful to all who continue to pray for Declan. It is very humbling when people stop us in the street to enquire about his health.
Love Is The Best Medicine.
Kate O’Melly